Selma Blair joins President Biden to celebrate Americans with Disabilities Act
Selma Blair speaks and joins President Joe Biden at a White House ceremony honoring the Americans with Disabilities Act.
Selma Blair feels “lucky” that her multiple sclerosis is still in remission, although the actress says she still experiences ongoing pain and stiffness.
The Cruel Intentions star updated fans and followers about her health in a new Instagram video posted this week, telling the camera from her bed while receiving intravenous immune globulin (IVIG) treatment Fans, she’s “doing great.”
“I was in pain all the time,” she said. “I’m just saying this for those of you who are also hurting. I get it.”
According to the National Institutes of Health, IVIG is a “hybrid antibody and biologic used to treat various immunodeficiency states and a variety of other diseases, including autoimmune, infectious, and inflammatory conditions. The ultimate goal of this therapy is Normalizes a compromised immune system.”
Blair was diagnosed with multiple sclerosis in 2018, and in 2021, she revealed that her MS was in remission. In her latest video update, the actress shared that although she still suffers from dystonia, a disorder that causes involuntary muscle movements, she is still in remission.
She explained that she noticed that she moved and walked better when she was alone than when she was in public. “When I go out, when I go into different rooms or hallways or meet new people or even focus on talking about it, it’s still very much there,” Blair said.
“I kind of don’t mind talking about how weird this is because I know it seems weird when I don’t talk to other people who have multiple sclerosis or other illnesses that may be like this, some neurological or other chronic disease , I had no idea it was going to come and go like this,” she added.
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Blair also noted that her body is still “very, very stiff” due to Ehlers-Danlos syndrome, a group of disorders that affect connective tissue in the body, primarily the skin, joints and Vascular wall. “I would pull my muscles easily, and then they would just sit there like slack,” she said. “So I had some injuries.”
But Blair said that while she still felt fatigued and was “stiff all the time,” she seemed to be “doing well” and would undergo another MRI and more blood tests.
Blair, who also starred in “Hellboy” and “Legally Blonde,” first revealed she had MS in 2018, writing on Instagram: “I have MS and I’m fine . But if you see me, just stop talking and just pick it up for me on the street.” She chronicled her battle with multiple sclerosis in the documentary “Selma Blair Presents.”
In 2021, the actress announced that her multiple sclerosis was in remission after receiving a hematopoietic stem cell transplant. “Some people wake up two years later and they say, ‘I’m healed! The color is brighter!'” she told Self in 2023. “But I never experienced that moment. I just stopped regressing.”
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While Blair said she wasn’t “complaining” because she was doing “really well,” she reflected that she wasn’t sure she would “have the coordination, balance, or stamina that she wanted.”
“Still lucky,” she said. “Still grateful. Still okay. But still disappointing.”
In October, Blair attended a White House event celebrating the Americans with Disabilities Act and the Rehabilitation Act with President Biden, where she shared, “While I’ve had symptoms since I was 7 years old, I’ve spent my whole life Time to Self-Advertise After living with pain and self-doubt for most of my life, I finally received a diagnosis at the age of 46.”
Contributed by Will Weissert, The Associated Press